Board of Directors

Each of the Directors serving on the Scleroderma Research Foundation’s Board is personally dedicated to the search for new and improved therapies for scleroderma patients. They volunteer their time, energy and resources to guide the Foundation’s efforts in funding and facilitating the highest quality research in pursuit of these improved therapies and, ultimately, a cure for scleroderma.



Luke Evnin, PhD, Chairman

Luke Evnin is a general partner and co-founder of MPM Capital, a dedicated investor in life sciences. He is a director of several pharmaceutical and healthcare companies. He is a scleroderma patient and has been a member of the Board of Directors since 2000. He has served as Chairman of the Board since 2002.

 

Kristen Baker Bellamy

Kristen Baker Bellamy is an actress, writer and television host who lost her mother to scleroderma. Her work on the television program Extra has helped to increase scleroderma awareness and she remains dedicated to raising its profile. She also serves on Kidstock Committee providing scholarships for inner-city children to attend college. She joined the Board of Directors in 2008.

 

Dana Delany

Dana Delany is an award-winning film, stage and television actress. She played the title role of a scleroderma patient in the film For Hope. She joined the Board of Directors in 1998.

 

Susan Feniger

Susan Feniger is a nationally recognized chef and restaurateur. She was a close friend of Scleroderma Research Foundation founder Sharon Monsky and became a founding member of the Board of Directors in 1988.

 

Saville Kellner

Saville Kellner is a business leader and is CEO of Lake Industries, JLS Financial, Black Card Radio and EggBank. In addition, he is a spokesperson for the Nevada Development Authority. He is also a scleroderma patient and joined the Board of Directors in 2013.

 

Jeff Mace

Jeff Mace is a partner with the international law firm Sutherland, Asbill & Brennan. He is also a scleroderma patient and currently is the President of the Scleroderma Foundation’s Tri-State chapter serving New York, New Jersey and Connecticut. Jeff has played a very active role in lobbying Congress to pass the Scleroderma Research and Awareness Act. He joined the Board of Directors in 2009.

 

Bob Saget

Bob Saget is an acclaimed actor, comedian, director, writer and producer. Among many other television shows and movies, he wrote and directed the telefilm For Hope, chronicling his sister’s struggle with scleroderma. He joined the Board of Directors in 2002.

 

Deann Wright

Deann Wright is a community leader, attorney and former medical researcher. She joined the Board of Directors in 2000 and in addition serves as our volunteer President.

 

Caryn Zucker

Caryn Zucker is a New York community leader and philanthropist who has experienced scleroderma in her family. She became a member of the Board of Directors in 2004. She also serves on the Board of Directors for the 92nd Street Y and the Fresh Air Fund.