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Foundation History

Sharon Monsky, Founder

Foundation History

1986

  • Foundation opens, starting what has become an acclaimed national scientific and medical research program aimed at finding a cure for scleroderma
  • First research funded
  • Cool Comedy – Hot Cuisine ’87 – ‘02
  • Wall Street Journal features Foundation
  • Pro-Am Celebrity Golf Tournament ’87 – ‘93

1987

1988

  • Foundation meets with President Reagan
  • Foundation awards $1/4 million dollars to research
  • SRF testifies: Congressional Appropriations Committees ’89 – ‘02
  • Foundation lays groundwork for innovative research model

1989

1990

  • New York Times features Foundation
  • SRF secures first National Scleroderma Awareness Week
  • SRF hosts first research symposium
  • Chairman Sharon Monsky serves on the NIAMS Advisory Council ’91 – ‘99

1991

1992

  • Foundation meets with President Bush
  • Bay Area Research Center opens
  • Trails to Sails bike events ’93 – ‘97
  • Business Week features Foundation
  • SRF hosts first East Coast Symposium

1993

1994

  • East Coast Research Center opens
  • Trails to Sails bike event raises over $100,000
  • Foundation meets with Hillary Clinton
  • Power of Two documentary produced by SRF
  • SRF hosts first annual scientific workshop

1995

1996

  • For Hope airs on national television
  • SRF launches Cure Advocate Program
  • Foundation appears on “Oprah”
  • Capitol Hill: “Healthy Women 2000” conference
  • Sheryl Crow gives concert to benefit SRF
  • East Coast Research Center expands to Ohio State University
  • Research!America grants SRF founder first National Volunteer Advocacy Award

1997

1998

  • First scientific journal devoted entirely to scleroderma
  • 10th annual Cool Comedy – Hot Cuisine sets fundraising record
  • SRF receives Golden Triangle Award from American Academy of Dermatology
  • LA Mart “Galaxy Club LA” benefits SRF
  • SRF hosts UCSF Scleroderma Research Day

1999

2000

  • Genetics studies program launched
  • SRF inaugurates Post Doctoral Program
  • East Coast Research Center expands to Duke University
  • SRF celebrates the return of Cool Comedy – Hot Cuisine
  • Fast Track to a Cure documentary produced by SRF
  • First-ever neurological study conducted by SRF

2001

2002

  • SRF publishes updated scleroderma handbook
  • 10th annual scientific research workshop hosted by SRF

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