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Foundation History

Sharon Monsky, Founder

About Us

Dedicated to Success!

When the Scleroderma Research Foundation was established by patient Sharon Monsky in 1987, there were no diagnostic tools for the disease, let alone treatments or medications. Research on scleroderma was almost nonexistent. For more than fifteen years, the Scleroderma Research Foundation worked to mobilize and develop an acclaimed national scientific and medial research program focused on the highest quality, cutting edge research.

The mission of the Scleroderma Research Foundation is to find a cure for scleroderma, a life-threatening and degenerative illness, by funding and facilitating the most promising, highest quality research and by placing the disease and the need for a cure in the public eye.

Today, the Scleroderma Research Foundation exists as the only organization in the nation dedicated exclusively to finding a cure for this terrible disease. Through nationwide public awareness efforts and an innovative research approach that brings together the best of business, government, science and medicine, the Foundation has raised millions of dollars for critical disease research.

Sharon Monsky succumbed to her long and heroic struggle against scleroderma in May of 2002. Thanks in large measure to exemplary leadership, a dedicated organization of staff and scientific advisors, and thousands of generous people around the world, the work that she started continues to inspire and generate progress for the more than 300,000 Americans who suffer from scleroderma.

The right people and technology are in place to cure this disease. The credo behind the Scleroderma Research Foundation is a firm belief that people make miracles happen. With your support, we will continue to fund groundbreaking scientific research at leading medical institutions aimed at finding potential therapies - and ultimately a cure - for scleroderma.

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