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In The News...
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Scleroderma and the Media
The Scleroderma Research Foundation is committed to educating the public and attracting national attention to its mission and the disease. Building nationwide recognition for scleroderma is important to generate funds needed for scientific research.
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The mass media of print, television, radio, and the Internet are inarguably the most powerful educational tools in the world.
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Whether enticing paparazzi with one of our star-studded fundraising events or working with the foremost medical reporters for a leading publication, SRF is working 365 days a year to increase scleroderma awareness.
In addition to producing two of its own acclaimed documentaries, The Power of Two, and Fast Track to a Cure, the work of SRF has been featured prominently on such television channels and programs as: A&E Biography, Access Hollywood, Dateline NBC, E! Entertainment Television, Oprah, Entertainment Tonight, 48 Hours, Fox Family Channel, Lifetime Television, Oxygen Media, …and countless local and network television and radio news/talk programs.
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Selected Press Coverage
Please call the Scleroderma Research Foundation or CLICK HERE for copies of any of the following publications or for additional public relations information.
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USA Today Online
October 26, 2001
Bob Saget raising awareness about Scleroderma (click here to view article)
Bob Saget is best known for his eight years on Full House and the popular television series America's Funniest Home Videos. But the comedian has even higher hopes for raising awareness about scleroderma. His sister Gay passed away from the disease seven years ago…
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The Wall Street Journal
December 14, 1987
One Victim of an Obscure Disease Uses Her Entrepreneurial Skills to Fight Back!
Given what Sharon Monsky, the 34 year-old entrepreneur has at stake, such determination isn’t surprising. For in addition to investing her time and money in her new business, Ms. Monsky has invested her life. A Stanford M.B.A. and former management consultant, Ms. Monsky was forced to change her life drastically when, in 1982, she was diagnosed with scleroderma, a fairly rare disease that in the form she has kills most of its victims within seven years. Now, as head of the Scleroderma Research Foundation, a nonprofit company she started last November, she is using her business acumen to raise money for studying the disease… |
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The New York Times
November 6, 1990
Business Approach Pays For a Start-Up Charity
As a teen-ager, Sharon L. Monsky competed against Dorothy Hamill as a top amateur figure skater. In her mid 20’s, she logged thousands of miles and hundreds of meetings as a management consultant with McKinsey & Company. Then in late 1983, when she was 30, her world came crashing down when she learned she had Scleroderma…
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Los Angeles Time
June 11, 1991
Scleroderma Benefit Banks on Laughs
Of course Sharon Monsky knew she’d see the day when 400 people would gladly give time and money to support her foundation. “I had a dream,” she said, “and it was that we could find a cure for the disease…
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Los Angeles Times
June 10, 1992
Benefit Gives Scleroderma Battle a Boost of $125,000
Times may be tough, but a benefit for an obscure and hard-to-pronounce disease—scleroderma—drew 420 people paying $250 apiece to Loews Santa Monica Beach Hotel, Sunday night to the fifth annual fund-raiser, entitled “Cool Comedy—Hot Cuisine”…
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San Francisco Chronicle
July 12, 1993
Baffling Skin Disease Is Focus of Bay Area Research
One little known ailment – obscure even though hundreds of thousands of Americans are afflicted by it—is known as scleroderma, a strange condition that thickens and immobilizes the skin and turns internal organs into tissues so densely fibrous they no longer function…
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Business Week
September 20, 1993
A Fast-Tracker on a Life or Death Mission
Sharon Monsky’s race to spread the word about Scleroderma
Sharon L. Monsky has always thrived on competition. As a teenager, she traveled the world as an internationally ranked figure skater. In the early 1980’s , she became a management consultant at McKinsey & Co., where her life was a series of 12 hour days and late-night, cross-country flights. Under the watchful eye of boss Robert H. Waterman Jr., the management guru who co-authored In Search of Excellence, she was clearly a rising star. “Had she stayed at McKinsey,” says Waterman, “I’m convinced she’d have become a director.”…
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Chicago Tribune
November 7, 1993
Chasing a Cure:
Slowly turning to stone, mother fights to save others
Thirteen years ago, Sharon Monsky was on top of the world. She had completed an MBA from the Stanford University business school and earned a place on the fast track at McKinsey & Co., an international management consulting firm…
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In Style
December 1994
Laughter, the best medicine
Whoever deposited the $300,000 proceeds from the Cool Comedy-Hot Cuisine party must have been laughing all the way to the bank. Humor heavies – including Lily Tomlin, Robin Williams and Garry Shandling hauled out their best impressions and one-liners for the Santa Monica fete, which benefited the Scleroderma Research Foundation…
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McCall’s
May 1995
Searching for a cure - “My body was turning to stone”
When Sharon Monsky was diagnosed with a fatal disease that hardened her skin and internal organs, she could have simply waited for death. Instead, she found the courage to live and fight for a miracle…
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Ladies’ Home Journal
September 1995
Women’s Diseases Doctors Miss
…One early sign of both lupus and scleroderma is persistent fatigue. Another possible indicator is extreme sensitivity to cold, with a person’s fingers becoming pale, numb and uncomfortable in chilly temperatures…
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Santa Barbara News Press
May 30, 1996
Woman takes crusade for cure to Senate
Sharon Monsky, the Santa Barbara woman who chairs the Scleroderma Research Foundation and who is afflicted with the disease, testified about the condition Wednesday before a special U.S. Senate hearing. Senator Arlen Specter, R-Pa., who chairs the Senate Appropriates subcommittee on health research allocations, and Senator Barbara Boxer, D-Calif., jointly led the hearing at a meeting in Los Angeles…
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In Style
November 1996
Real Life Crusader – Dana Delany’s role as a Scleroderma victim in ABC’s For Hope isn’t just a job—it’s part of her commitment to finding a cure
When actress Dana Delany started working on For Hope, a television drama airing on ABC this month, she was going through a bit of a crisis. “I had just turned 40 and was beginning to think about my own mortality,” she explains. “And yet I had never felt more alive and positive while acting in a role.” Appropriately, the role that lifted Delany’s spirits is that of Hope, a young woman struck down in her prime by a debilitating and sometimes deadly disease, scleroderma, something Delany knows a great deal about thanks to her volunteer work. For more than three years, Delany has devoted her time and energy to the Scleroderma Research Foundation helping to raise funds and public knowledge…
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People
July 1, 1996
Gift of Laughter – Seinfeld’s Jason Alexander helps his sister battle a deadly disease
…In May he spoke before a special Senate committee on behalf of the Scleroderma Research Foundation. He will host their L.A. fundraiser in October, and on August 3 he will be the keynote speaker at the United Scleroderma Foundation’s annual conference…
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TV Guide
November 16, 1996
Bob Saget—A Movie About Hope
Bob Saget just can’t help himself. Even when directing For Hope, a TV-movie with a tragic theme, the host of America’s Funniest Home Videos makes people laugh. “Code three, code three, ”he says as a trio of actors wearing white coats are led into a Vancouver hospital room. “Doctors coming through.”…
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The Journal of Experimental Medicine
January 6, 1997
Scleroderma Autoantigens are Uniquely Fragmented by Metal-catalyzed Oxidation Reactions: Implications for Pathogenesis
The observation that revelation of immunocryptic epitopes in self antigens may initiate the autoimmune response has prompted the search for processes which induce novel fragmentation of autoantigens as potential initiators of autoimmunity…
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Scientific American
March 1997
In Brief – Clues from Scleroderma
New results have shed light on why the body sometimes attacks its own tissues: Antony Rosen and colleagues at Johns Hopkins University developed novel means for tracking the biochemistry behind scleroderma, an autoimmune disorder that damages the arteries, joints, and internal organs…
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Good Housekeeping
October 1997
Courage Under Fire
A mother of three, Sharon Monsky is battling a cruel but little-known disease. With the help of comedian Bob Saget and others, she’s also campaigning for a cure – which may come too late to save her…
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