What is the difference between the Scleroderma Research Foundation and other similar organizations?

The Scleroderma Research Foundation has a process for receiving research proposals and a networking capability to bring top medical experts to our organization and into the field of scleroderma. We have a world-renowned Scientific Advisory Board that reviews our research grant applications, makes recommendations for funding and helps us understand research priorities. The Scientific Advisory Board makes key introductions for us and brings experts to our group. The result is that over the years, we have developed a highly collaborative Research program that far exceeds typical peer-reviewed research.

We fund clinical centers. The centers provide coordinated patient care across many different specialties of medicine and also run clinical trials. Many experts, who are now actively working in the field of scleroderma research, would not be involved without collaborations fostered by the Foundation.

Other organizations have made very good progress educating and supporting patients. The Scleroderma Research Foundation is dedicated exclusively to funding medical research. We feel strongly that the best way to help patients is to find, fund and facilitate the most promising research that will lead toward improved therapies and, ultimately, a cure for scleroderma. Compared to other like-minded organizations, the Scleroderma Research Foundation invests a much higher percentage of its budget to medical research.

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