Research is the Focus of Rare Disease Day 2017

Author: Nicola Whitehall
Date Published: February-2017
Source: Scleroderma News

The theme for this year’s Rare Disease Day on Feb. 28 is “Research,” which is a most-welcome topic to Raynaud’s and scleroderma patients across the globe. Investment in medical research provides immense hope and some comfort to the rare disease patient living with a currently incurable diagnosis. Last year, Rare Disease Day 2016 — making the voice of the patient be heard — was the focus of my first column for “Living the Dream, Scleroderma Style” here at Scleroderma News.