Cure Crew Events

The activities of Cure Crew members are as diverse and creative as the members themselves. Everyone can get involved. The Scleroderma Research Foundation’s Cure Crew program is a growing team of people across the nation who are planning fundraising and awareness-building events in support of scleroderma research. The SRF can provide guidance, tools and resources to help Cure Crew members plan a successful activity that will make a difference in the lives of people living with scleroderma. Here are some ideas that other Cure Crew members have created or participated in:

  • Bake sale
  • Barbecue
  • Baseball game
  • Bowling tournament
  • Car wash
  • Casino night
  • Cocktail party
  • Concert
  • Cook-off
  • Costume contest and party
  • Dance-a-thon
  • Dinner party
  • Fashion show
  • Gallery opening
  • Garage sale
  • Rummage sale
  • Garden tours
  • Gift wrapping
  • Holiday party
  • Lemonade stand
  • Letter writing campaign
  • Live auction
  • Marathon
  • Mountain climbing
  • Movie Night
  • Open house
  • Op-Ed pieces to local media
  • Pooling tips for a day
  • Pub crawls
  • Public Service Announce.
  • Local radio spots
  • Recycling proceeds
  • Runs and races (5K, 10K, etc.)
  • Silent auction
  • Singing competition
  • Spare change collections
  • Talent show
  • Triathlon
  • Walk-a-thon
  • Wine tasting

Success stories

There are so many great ideas that Cure Crew members have put together. Here are some creative ideas that show how our Crew members have been successful:

  • One caring couple from Seattle, Washington put jars on their desk at home and at the office. Every time they used the word “like” or “ummm…” in a sentence, they put a dollar in the jar. One year later, their bad habit was cured and $856 was raised for scleroderma research!
  • “Walk Together,” an annual 5K walk-a-thon hosted by two Cure Crew members on Long Island, New York has raised more than $150,000 for research.
  • An annual awareness-building and fundraising golf tournament organized by the Pleasanton Lions Club in California has raised more than $100,000 in the past seven years.
  • Perona Farms (a specialty food company) in New Jersey hosted an annual wild game dinner. Local chefs donated time and ingredients and local media was typically on hand to report on scleroderma awareness and the innovative cuisine.
  • In Illinois each year, the Kosmach family hosts a bowl-a-thon that has raised nearly $250,000 for research over the years.
  • Two teenagers worked together in Santa Barbara, California to organize a benefit concert that raised more than $90,000.
  • One family from Omaha, Nebraska handed out mason jars with a note asking their friends, family and co-workers to place all of their spare change for a month in the jar. At month’s end, they had collected more than $3,500.
  • Each year, one individual sends out a letter in memory of his mother who passed away from scleroderma. Each letter includes a self-addressed tribute envelope from the SRF.

Other ideas:

  • If you are an athlete, or aspire to be one, you can choose to run, walk, swim or bike in an existing and unaffiliated event – soliciting pledges for every mile or lap completed.
  • A traditional rummage sale with donated items can be coupled with a bake sale consisting of donated goodies.
  • Members of civic clubs, church groups, sports leagues and other groups can arrange for presentations on scleroderma.
  • Ask a local newspaper or magazine to write about scleroderma and offer to be interviewed. The staff of the Scleroderma Research Foundation can participate in these interviews as well.
  • Arrange for a special film screening of the scleroderma-based movie, For Hope, and provide participants with literature on scleroderma as well as donation forms provided by the Foundation.

Some activities are one-time events and others are held year after year. Many of the most successful projects are those that repeat annually and draw upon the support of family, friends and community. Whatever activity you decide to organize, it should be one that you feel comfortable organizing. Large or small, all Cure Crew efforts are both important and appreciated.