Volunteer to participate in the Scleroderma Patient Registry & Tissue Data Bank
As a scleroderma patient, you can help in the search for a cure by providing critically needed tissue samples for research. The Scleroderma Patient Registry & Tissue Data Bank is helping scientists learn how scleroderma progresses in the body, by providing immediate access to high quality, highly specific tissue samples, cross-referenced to patient histories and disease conditions.
Systemic scleroderma patients who can travel to UC San Francisco, at their own expense, are encouraged to participate in this vital program by providing blood samples, DNA, and/or skin biopsies that will be used in our research. To volunteer for the Scleroderma Patient Registry & Tissue Data Bank, simply complete the secure Patient Registry form below. Your help can truly make a difference in our search for a cure.
Your patient history will be reviewed and those who most closely match the required patient profile will be contacted. It will take from one half-day to a full day at the center to complete the samples collection. Don’t be discouraged if you are not asked to provide samples – scientific protocols demand that every patient sample meet stringent and standardized requirements. Your willingness to help, whether or not you provide samples, is greatly appreciated.
CLICK HERE for our secure Patient Registry Form.
|
