All medical information on this Web site has been reviewed for accuracy by physicians. However, the information posted here by the Scleroderma Research Foundation or any third party should not be considered medical advice, nor is it intended to replace consultation with a qualified physician. The Scleroderma Research Foundation does not endorse or recommend any particular medication, physician, product, service, equipment or treatment. Scleroderma often varies substantially from one patient to another, and disease management must be tailored by a qualified physician for each individual case.
Any hypertext link contained in the Scleroderma Research Foundation Website is provided for convenience only. Scleroderma Research Foundation (i) possesses no control whatsoever over such links or any sites linked thereby, (ii) makes no express or implied warranties, representations or endorsements of any kind regarding any linked site, and (iii) assumes no liability of any kind for any information contained in any linked site.
In consideration of your accessing the Scleroderma Research Foundation’s Website, you agree that (i) under no circumstances shall the Scleroderma Research Foundation be liable for any damages whatsoever in connection with, arising out of or resulting from your use of the Scleroderma Research Foundation’s Website or any information contained in the Scleroderma Research Foundation’s Website and (ii) you will defend, indemnify, save and hold harmless the Scleroderma Research Foundation from and against all suits, claims, demands, causes of action, judgments, damages, losses, liabilities and expenses arising out of or resulting from your use of the Scleroderma Research Foundation’s Website or any information contained therein.
Unless otherwise indicated, all information contained in the Scleroderma Research Foundation Website is copyrighted by and proprietary to the Scleroderma Research Foundation, and may not be reproduced, published, transmitted or distributed in any manner without the prior express, written consent of the Foundation, although you may download one (1) copy of the information contained in the Foundation’s Website for your own personal, non-commercial use.
The Scleroderma Research Foundation may modify this Disclaimer, or any other information contained in the Foundation’s Website, at any time without notice, and it is your responsibility to apprise yourself of the most current disclaimer/information.
The Scleroderma Research Foundation’s official web site address (URL) is http://www.srfcure.org or http://www.sclerodermaresearch.org. When you visit our web site, your Web server automatically logs (records) domain name and standard information about the operating system and Web browser you are using, as provided by your Web browser. To track your progress through the site and to help us evaluate usage of the site, the server places a "cookie"—a small text file with an identification number—on your machine. This automatically collected information is used for statistical purposes to help us manage our site, but it does not identify you in any way.
We collect information about you only if you volunteer it. There are several ways you may volunteer information on the site. These include completing a survey, sending an email inquiry to us, contributing online, or registering for or contributing to a participant in an event or program online. The information we collect is used to provide you with information about our programs. We generally respond to you by postal service mail, email, or telephone—depending on your requests and our resources.
If you provide your postal address, telephone number, or email address to the Scleroderma Research Foundation online, you may receive any of the following periodic contacts from us:
- Electronic or postal mailings with information about scleroderma and the Foundation’s programs and events;
- Electronic or postal mailings to invite you to join help the Foundation achieve its mission;
- Telephone contact to respond to your inquiries or invite you to help the Foundation achieve its mission;
- Electronic or postal mailings to respond to your questions, comments or suggestions.
If you would like to opt out of any or all of these types of contacts, please either send us an email or call 1-800-441-2873 or write us at Scleroderma Research Foundation, 220 Montgomery Street, Suite 484, San Francisco, CA 94104. Please state your wishes clearly, referencing the following contact types:
- No email
- No postal service mail for fundraising purposes
- No telephone calls for fundraising purposes
Any message posted or e-mailed to the Scleroderma Research Foundation Website is public, and the Foundation may use such messages in furtherance of its mission including, but not limited to, compiling databases and developing promotional materials, testimonial materials and responses to inquiries.
The Scleroderma Research Foundation does not make telephone numbers, postal or email addresses that you have voluntarily provided available to other organizations. The Foundation does not sell or otherwise share contact information. For more information, please send us an email or call 1-800-441-2873 or write us at Scleroderma Research Foundation, 220 Montgomery Street, Suite 484, San Francisco, CA 94104.
Our Commitment to Data Security
To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect online.
The Scleroderma Research Foundation's current IRS Form 990 and Audited Financial Statement are available for review and can be download as PDF files.
All information on this site is the property of the Scleroderma Research Foundation. Copyright © 1988-2012, Scleroderma Research Foundation. All rights reserved.