Resources – Links – Contributors
Scleroderma Research Foundation
The only national organization focused exclusively on finding a cure for scleroderma, by raising awareness and funds to facilitate the highest quality, most promising research
220 Montgomery, Suite 1411
San Francisco, CA 94101
toll free: 800-441-CURE
main office: 415-834-9444
Scleroderma Registry & Clinic
The first collaborative tissue-based patient registry. Call if you can travel to the center to donate blood or tissue samples to help the search for a cure.
Department of Dermatology
University of California San Francisco
Box 0517
San Francisco, CA 94143-0517
415-502-5358
www.dermatology.ucsf.edu/autoimmune
Johns Hopkins Scleroderma Center
One of the largest scleroderma clinics in the country. Researchers at this Foundation-funded Center’s also are dependent upon patient-donated tissue and serum to aid their critical investigations.
5510 Hopkins Bayview Circle
Baltimore, MD 21224
410-550-7716
National Institute of Arthritis & Musculoskeletal & Skin Diseases (NIAMS)
National Institutes of Health (NIH)
Supports research into the causes, treatment and prevention of arthritis and musculoskeletal and skin diseases, the training of scientists to carry out this research, and the dissemination of information on research programs in these diseases.
301-495-4484 or toll-free 877-22-NIAMS
Scleroderma Family Registry & DNA Repository
A national registry established by the National Institutes of Health to identify genes that influence susceptibility to scleroderma. Scleroderma patients and their families are encouraged to participate in the registry and provide DNA samples as a resource to scientists studying genes associated with scleroderma.
1-800-736-6864
Scleroderma Foundation
A national nonprofit organization that provides patient support, public education and research funding.
1-800-722-4673
www.scleroderma.org
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