Actress and Scleroderma Research Foundation Board Member Dana Delany speaks out about her "hero" on CNN's "Sharing the Spotlight: Celebrity Heroes." Her hero, SRF Chairman Luke Evnin, PhD, is a scleroderma patient and general partner at one of the world's largest investors in life sciences.

Delany calls his efforts and accomplishments on behalf of the thousands of scleroderma patients "nothing less than heroic."

In her own words, "If anybody's going to solve this problem, it's going to be Luke."

The staff and Board of Directors of the SRF congratulate both Dana Delany and Luke Evnin on their success. We thank them for helping to raise the profile of this life-threatening illness and for their dedication to improved therapies and a cure.

Please visit the CNN link here to view the print and video versions of this story.

The Scleroderma Research Foundation (SRF) has become the nation’s largest nonprofit investor in scleroderma research, raising more than $26,000,000—with every dollar coming from charitable gifts from generous individuals, corporations and foundations. In 2009, the SRF has provided more than $1,101,000 in direct research grants. Unlike university and medical foundations restricted to one institution, the SRF actively searches out the most promising researchers and laboratories aimed at helping scleroderma patients around the world. We are now funding research at Boston University, Dartmouth, Johns Hopkins, Harvard, Northwestern University, Stanford, the University of Michigan, University of Washington and the Royal Free Centre for Rheumatology in London, England. To make a contribution, please click here.