The following organizations offer useful information about scleroderma, its symptoms, and related issues. Organizational listings and links to other Web sites found on sclerodermaRESEARCH.org are provided as a service to our viewers. Listings and links do not constitute endorsement by the Scleroderma Research Foundation, and the Foundation is not responsible for their content.

Scleroderma Family Registry & DNA Repository
A national registry established by the National Institutes of Health to identify genes that influence susceptibility to scleroderma. Scleroderma patients and their families are encouraged to participate in the registry and provide DNA samples as a resource to scientists studying genes associated with scleroderma.

Coordinator of the Scleroderma Family Registry
University of Texas Health Science Center at Houston
6431 Fannin Street
MSB 5.270
Houston, TX 77030
(800) 736-6864

Johns Hopkins Scleroderma Center
The Johns Hopkins Scleroderma Center is one of the largest scleroderma clinics in the country. The center specializes in the management of systemic sclerosis, Raynaud's phenomenon and related disorders. In addition to patient care, the center is involved in both basic and clinical research projects funded in part by the Scleroderma Research Foundation.

5510 Hopkins Bayview Circle
Baltimore, MD 21224
(410) 550-2629
http://scleroderma.jhmi.edu/

Scleroderma Clinical Trials Consortium
The Scleroderma Clinical Trials Consortium (SCTC) is a charitable non-profit organization dedicated to finding better treatment for scleroderma. Member institutions of the SCTC conduct clinical treatment trials of new (and sometimes old) medications that appear promising for the treatment of scleroderma.

715 Albany Street, E-5
Boston, MA 02118
(617) 638-4486
www.sctc-online.org

UCSF Scleroderma Registry & Clinic
The first collaborative tissue-based patient registry in the United States. Scleroderma patients are encouraged to call if they can travel to the center to donate blood or tissue samples to help in the search for a cure.

Department of Dermatology
University of California San Francisco
Box 0517San Francisco, CA 94143-0517
(415) 502-5358
www.dermatology.ucsf.edu/autoimmune

American Medical Association (AMA)
The American Medical Association speaks out on issues important to patients and the nation's health.

515 N. State Street
Chicago, IL 60610
(800) 621-8335
www.ama-assn.org

Arthritis Foundation
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.

P.O. Box 7669
Atlanta, GA 30357-0669
(800) 283-7800
www.arthritis.org

International Scleroderma Network
The International Scleroderma Network is a nonprofit organization whose volunteers and members operate a comprehensive website in multiple languages, publish a scleroderma book series, and support international scleroderma research. They also manage the Scleroderma Webmaster’s Association, which provides links to many scleroderma resources.

7455 France Ave So #266
Edina, MN 55435 USA
(800) 564-7099
(952)831-3091
www.sclero.org

Pulmonary Hypertension Association
The mission of the Pulmonary Hypertension Association (PHA) is to seek a cure, and to provide hope, support and education, and to promote awareness and to advocate for the pulmonary hypertension community.

850 Sligo Avenue, Suite 800
Silver Spring, MD 20910
(301) 565-3004
www.phassociation.org

Raynaud’s Association
The Raynaud’s Association is a national non-profit organization whose mission is to provide support and education to the millions of sufferers of Raynaud’s Phenomenon.

94 Mercer Ave.
Hartsdale, NY 10530
(800) 280-8055
www.raynauds.org

Research America
The mission of Research America is to achieve funding for medical and health research in both public and private sectors at a level warranted by scientific opportunity and supported by public opinion. Also, the organization strives to better inform the public of the benefits of medical and health research and the institutions and organizations performing such research.

1101 King Street
Suite 520
Alexandria, VA 22314
(703) 739-2577
(800) 366-2873
www.researchamerica.org

Scleroderma Foundation
The Scleroderma Foundation is a national organization providing support, public education and research funding for people with scleroderma and their families and friends.

12 Kent Way, Suite 101
Byfield, MA 01922
(800)722-4673
www.scleroderma.org

Society for Women’s Health Research

The Society for Women's Health Research is the nation's only non-profit advocacy group whose sole mission is to improve the health of women through research.

1828 L St., NW Suite 625
Washington, DC 20036
(202) 223-8224
www.womens-health.org