Welcome to Julie Hullum's Member Page
Member Since:  January, 2012
Total Raised:  $400.00
Thank you for visiting my Cure Crew page! Please join me in the fight against scleroderma. Every contribution we make together is an investment toward a cure. Supporting my Cure Crew efforts will enable the Scleroderma Research Foundation to fund research that will find improved therapies and, ultimately, a cure for people living with scleroderma.

My mother, Ruby Hullum, was diagnosed with scleroderma when I was a teenager. It was a very frightening time for my mom and the entire family, but Ruby faced her battle with faith, courage, and grace. At that time, information was scarce. We learned about scleroderma by watching it progress. Many of my mom's doctors learned right along with her. Through the years, they would often ask if they could bring a student or colleague in to see her because scleroderma patients were not frequently diagnosed - she would always oblige. Ruby Hullum died in 2002, before a cure could be found.

My mom was a God-loving and compassionate soul and her deepest desire was always that the medical profession could learn something from her pain that may help someone else. It is in this spirit that the 1st Annual Ruby's Ride For Research was born.

What is scleroderma?
Scleroderma is much more than ‘hard skin,’ as its name implies. Chronic, complex and debilitating, it can affect the internal organs with life-threatening consequences. Depending on the subtype of illness, scleroderma can damage the joints, muscles, lungs, kidneys, vasculature and gastrointestinal tract with grave results. Scleroderma is an auto-immune disease. It is not contagious and not directly hereditary. Scientists don’t yet know what causes it and until a cure is found, medical research is the key to developing improved treatments that will help patients live longer, fuller lives.

What is the SRF?
The Scleroderma Research Foundation is the nation’s leading nonprofit investor in medical research aimed at finding improved therapies and a cure for people living with scleroderma. A growing number of supporters have allowed the Foundation to invest millions of dollars in the most promising medical research. One hundred percent of the Foundation’s revenue comes from generous individuals who recognize that they can make a difference.

Your support is vital and, together, we will find a cure.

my events

  • Fundraising Goal:
    $5,000.00

    Donations Raised:
    $150.00

    My Supporters:
    Aubrey Rhodes $100.00
    Donna Lord $50.00
    Ruby's Ride For Research
    Date/Time:  Sunday, June 03, 2012 at 01:00PM
    City/State:   Augusta, GA